I am SO EXCITED to announce that you can now register to follow my blog. Please go to http://livingwithmyotonicdystrophy.com and at the bottom of the website page you can register.
The purpose of my blog is to help educate individuals as to the complexity of Myotonic Dystrophy. Even those of us who live with it tend to forget how multi-systemic this disorder is.
I was just talking to a dear friend about the loss of her myotonic daughter due to excessive levels of CO2. Her daughters levels were over 300. It's heartbreaking that we are still losing family members because this disease is still not entirely understood.